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| Research and Studies for Twins The following is a list of valuable research programs/ studies regarding twins and multiples. For more information on specifics for each study contact the name listed. Some of the programs provide compensation for participation. Adult Twins Who Are Parents Study Parents who are also twins or part of higher order multiples To compare the relationships of identical and fraternal aunt/uncles to their nieces/nephews Contact: Nancy Segal, Ph. D.; California State University, Fullerton, Psychology Department, 800 N. State College Blvd., Fullerton, CA 92834 Phone: (714) 278-2568 (Twin Studies Center) Email: nsegal@fullerton.edu Applying the Twin Method to Language Development To examine aspects of language which are typically acquired at a rather late age (after age 3). These include the passive voice, derivational morphology and past tense marking. Contact: Jennifer Ganger, Ph.D., 405 Langley Hall, Department of Psychology, 210 S. Bouquet Street, University of Pittsburgh, Pittsburgh, PA 15260 Phone: (412) 624-3064 Email: jganger@pitt.edu Research Assistant: Sabrina Dunn Phone:412-624-1162 Email:sdunn@pitt.edu Asthma Symptoms, Treatment, and Social Environments in Families with Twins The multiples must be between 2 and 17 years of age. Contact: Edward P. Sarafino, Ph.D., Dept. of Psychology, The College of New Jersey, P.O. Box 7718, Ewing, NJ 08628 Phone: 609-771-2650 Email: sarafino@tcnj.edu Research Assistant: Sabrina Dunn Phone:412-624-1162 Attention-Deficit Hyperactivity Disorder (ADHD) in Identical Twins Identical twins between the ages of 6 and 16 years who are either completely discordant for ADHD (one twin has ADHD and the other does not) or who are completely concordant for ADHD (both twins have ADHD). Contact: Judith Rapoport, M.D. and Wendy Sharp, M.S.W., National Institute of Mental Health (NIMH), Bldg 10, Rm 3B19, Bethesda, MD 20892-1251 Phone: (301) 594-2499 Email: wsharp@helix.nih.gov Blood Pressure in Twins Contact: Lily Rao Phone: 858-552-8585 extension 6158 Fax: 858-642-6331 Email: frao@ucsd.edu Conception and Embryogenesis of Twins Contact: Charles E. Boklage, Ph.D., Professor of Genetics and Pediatrics, Adjunct Professor of Biology, East Carolina University, School of Medicine, Greenville, NC 27858-4354 Phone: (252) 816-2301 Fax: (252) 816-3292 Email: boklagec@mail.ecu.edu Genetic Determinants of the Immune Response to Hepatitis B Vaccine Contact: Charles Larsen, Ph.D., The CBR for Biomedical Research, 800 Huntington Avenue, Boston, MA 02115 Email: larsen@cbr.med.harvard.edu Genetic Factors Influencing Cognitive Control Healthy identical and fraternal twins, ages six - adult B.J. Casey, Ph.D., Weill Cornell Medical College, 1300 York Avenue, Box 140, New York, NY 10021 Contact:: Adriana Galvan, Research Assistant telephone: 212-746-5843 Fax: 212-746-5755 Email: adg2006@med.cornell.edu The Genetics of Human Twinning: DNA Linkage Analysis SUBJECTS NEEDED: The study population includes families who have more than five sets of twins or multiple births (without the use of fertility drugs)on one side of their family. Kenneth Ward, M.D. Contact: Mary Meade, EmerGen, Inc., 390 Wakara Way, Salt Lake City, UT 84108 Heritability of Macular and Retinal Degeneration in Children and Young Adults Johanna M. Seddon, M.D., Associate Professor, Dept. of Ophthalmology, Harvard Medical School, Mass. Eye and Ear Infirmary, 243 Charles St., Boston, MA 02114 telephone: 617-573-4289 Fax: 617-573-3570 Emailt: jennifer_clow@meei.harvard.edu Loss of a Twin in Childhood and Adolescence: Behavioral Significance and a Program for Intervention Identical and fraternal twins whose twin died between the ages of 6 - 16 years and adult twins whose twin died between the ages of 6 -16 years. Contact: Nancy Segal, Ph.D.; California State University, Fullerton, Psychology Department, 800 N. State College Blvd., Fullerton, CA 92834 Phone: 714-278-2568 (Twin Studies Center) Email: nsegal@fullerton.edu Lower Body Negative Pressure Exercise to Prevent Physiological Deconditioning Associated with Spaceflight Identical female twins 21 - 50 years of age, Alan R. Hargens, Ph.D. Contact: Brandon R. Macias, 350 Dickinson St, 8894, San Diego, CA 92103-8894 Phone: 619-543-7441 Fax: 619-543-2540 Email: brmacias@ucsd.edu Menstrual Cycles in Mothers of Dizygotic Twins Healthy women 18-34 who are mothers of fraternal twins, are on no medication (including birth control pills), have regular menstrual cycles, have had no assisted reproductive technology (i.e. IVF, GIFT, etc.) and have a female relative who has also had fraternal twins Contact: Dr. Janet E. Hall, Massachusetts General Hospital, Reproductive Endocrine Unit, BHX-5, 55 Fruit Street, Boston, MA 02114. Phone: (617) 726-1895 Email: krado@partners.org Molecular Genetics of Stuttering Any member of a twin pair who stutters Contact: David B. Rosenfield, M.D., Professor, Director Stuttering Center Speech Motor Control Laboratory, Dept. of Neurology, 6501 Fannin, Suite NB 302, Baylor College of Medicine, Houston, TX 77030 Email Address: davidr@bcm.tmc.edu National Institutes of Health Twin Study Healthy identical and same-sex fraternal twins, ages 5-18 Jay Giedd, M.D., National Institute of Mental Health, Bldg 10, Room 4C110, Bethesda, MD 20892-1367 CONTACT: Mark Celano EMAIL: celanom@mail.nih.gov PHONE: 301-435-4515 Pathogenic Studies in Families with Twins or Siblings Discordant for Systemic Rheumatic Disorders Children or adults who are twins or other multiples, or close brother or sister pairs (same gender) within four years of age, where one is well and one has a diagnosis of rheumatoid arthritis (RA), systemic lupus erythematosus (SLE), systemic sclerosis (SSc), and idiopathic inflammatory myopathy (IIM, meaning any form of adult or juvenile dermatomyositis, polymyositis or inclusion body myositis). The diagnosis of RA, SLE, SSc or IIM has to be within four years of enrollment. Normal healthy volunteers, who do not have a blood relative with a rheumatic or autoimmune disease, and who are matched to enrolled patients, are also eligible to enroll in this study. Contact: Frederick W. Miller, M.D., Ph.D., Chief, Environmental Autoimmunity Group, Office of Clinical Research, National Institute of Environmental Health Sciences, NIH, 9000 Rockville Pike, NIH Building 9, Room 1W107, MSC 0958, Bethesda, MD 20892-0958 Telephone: 1-800-411-1222 (For TTY: 1-866-411-1010) Fax: 732 445-6715 Email: millerf@mail.nih.gov Perinatal Factors and Language Development 600 twin pairs (200 MZ, 200 same sex DZ, and 200 opposite sex DZ) who are are between 1.5 and 6 years of age (18-83 months), learning English as a first language, normally developing or experiencing developmental delays, former prematurely-born or full-term babies. ContactI: Karin Stromswold, M.D., Ph.D., Perinatal Factors & Language Development Project, Psychology Department & Center for Cognitive Science, Rutgers University, P.O. Box 5062, Piscataway, NJ 08854 telephone: (732) 445-4309 Fax: (732) 445-6715 Email: perinatal@ruccs.rutgers.edu Prediction of Type I (Juvenile - Onset) Diabetes Identical twin pairs in which only one has Type I Diabetes Contact: George Eisenbarth, M.D., Barbara Davis Center for Childhood Diabetes, UCHSC Box B 140, 4200 East Ninth Ave., Denver, CO 80262 Email: George.Eisenbarth@UCHSC.edu Project Grow-2-gether: The Genetics of Child Eating Styles and Body Weight in Early Life Same-sex twins 3 - 8 years old and their mothers Contact: Myles S. Faith, Ph.D., David B. Allison, Ph.D., Obesity Research Center, 1090 Amsterdam Ave., 14th Floor, New York, NY 10025 Email: mfaith@mail.med.upenn.edu Sibling Relationships Participants must be over the age of 18.. All types of twins are needed. Contact: R. Chris Fraley, Ph.D., and Caroline M. Tancredy, M.A.; University of Illinois at Champaign-Urbana, Department of Psychology, 603 East Daniel Street, Champaign, IL 61820 telephone: (312) 355-2502; (773) 235-3016 Fax: (312) 413-4122 Email: rcfraley@uiuc.edu; cmtancredy@ucdavis.edu Twins Study at Harvard on the Heritability of Language Same sex fraternal and identical twins between 10 and 24 months of age. Contact: Steven Pinker, Ph.D. and Jennifer Ganger, Ph.D., Twins Study at Harvard, Harvard University, William James Hall - 970, 33 Kirkland Street, Cambridge, MA 02138 Email: twins@wjh.harvard.edu Telephone: 617-495-0937 Website: http://twins.wjh.harvard.edu Twins, Virtual Twins and Friends: Peers and Adjustment Nancy L. Segal, Ph.D. and Shirley A. McGuire, Ph.D. Contacts: 1. Dr. Nancy L. Segal, California State University Fullerton (CSUF), Psychology Department, H830M, 800 N. State College Blvd., Fullerton, CA 92834; Phone: (714) 278-2568; Fax: (714) 278-4843; Email: nsegal@fullerton.edu. 2. Dr. Shirley A. McGuire, University of San Francisco (USF), 2130 Fulton Street, Department of Psychology, San Francisco, CA 94117-1080; Phone: (415) 422-5265; Fax: (415) 422-2517; Email: mcguire@usfca.edu. Twins Who Seem to Remember Previous Lives SUBJECTS NEEDED: (1) Twins of any age, one or both of whom seem to remember (or used to remember) a previous life, or (2) twins, 5 years old and younger, who are clearly identical (monozygotic), and who are markedly different in physical and/or behavioral features, who may not have expressed memories of a previous life, but who are young enough that they might still do so. Jim Tucker, M.D., Research Assistant Professor; Dawn Hunt, R.N., Research Assistant, Sponsoring Institution/Organization: Division of Personality Studies, University of Virginia medical School Mailing Address: Division of Personality Studies UVA Health System P.O. Box 800152 Charlottesville, VA 22908-0512 Telephone: (804) 924-2281 Women's Decision-Making Regarding Multifetal Reductions Women who were offered multifetal pregnancy reduction for a pregnancy with three or more fetuses. The pregnancy must have concluded at least six months ago. Kate Sullivan Collopy, Ph.D., RN, CCNS, Assistant Professor, University of New Hampshire, 257 Hewitt Hall, Durham, NH 03824 Phone: (603) 862-0549 Email: kate.collopy@unh.edu |